1. National Lymphedema Network (www.lymphnet.org)
“NLN” is an excellent resource for education & keeping up with lymphedema news. It covers information ranging from research & case studies to insurance & news. To have the most in-depth access, you must be a member.
2. Lymphoedema.org (http://www.lymphoedema.org/)
The Lymphoedema Support Group is a national support group in the United Kingdom which exists to educate patients. (Notice the spelling of “lympoedema” is the common European version of lymphedema.)
3. LymphActivists.org (http://www.lymphactivist.org/)
This is a site developed by the husband of patient who experienced cancer & subsequent lymphedema. Its purpose is to serve as a resource for patients & therapists to navigate the insurance world & also be a resource for lymphedema education.
4. Lymphedema People (http://www.lymphedemapeople.com/)
Resource created by patients for patients.
5. Step Up-Speak Out (www.stepup-speakout.org)
A site created by women with post-breast cancer lymphedema to provide education & resources to patients & others.
6. European Society for Lymphology (http://www.lymphology.eu/)
Primarily a resource for medical professionals, this site contains up-to-date articles on Lymphedema & a free online journal.
7. Lymphedema Treatment Act (http://lymphedematreatmentact.org/)
Founded by The Lymphedema Advocacy Group, this site is dedicated to maintaining up-to-date information on the Lymphedema Treatment Act. (The Lymphedema Treatment Act is legislation HR3877, designed to improve Medicare health insurance coverage for patients with lymphedema.)
8. American Lymphedema Framework Project (https://www.alfp.org/)
A partner in the larger International Lymphoedema Framework, the “ALFP” is dedicated to raising awareness & improving the care of patients with lymphedema.
9. American Cancer Society (http://www.cancer.org/search/index?QueryText=lymphedema)
This link provides a resource specifically for cancer-related lymphedema.
10. Lymphology Association of North America (https://www.clt-lana.org/index.html)
“LANA” is a website primarily for therapists but it’s a great place to discover additional resources & to find therapists who have been through a lymphedema training school (135 hours or more of training) AND have passed the national certification exam. (The latter isn’t necessary to treat lymphedema patients but it indicates a higher level of experience.) Unfortunately, the site isn’t always current with therapists who have passed their exam.
And one to grow on:
Lymphatic Education & Research Network (http://www.lymphaticnetwork.org/)
The Lymphatic Education & Research Network is an organization dedicated to doing what their name suggests: Lymphatic research & education.
