Lymphedema Therapy Source

  

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Billing for Compression (part 3)

We’ve been talking about how a therapist can bill for compression in light of the passage of the Lymphedema Treatment Act. Last month, we noted there were (3) models. The third model involved:

  • a therapist billing Medicare for compression as a supplier & for service as a provider for their own patients, and
  • the same therapist also billing for compression for people who are not their patients.

This gets tricky because the model gives rise to unique ownership concerns related to Medicare & Medicaid payments. (Government complicates things.) These concerns revolve around federal statutes & criminal liability. That’s the focus of this month’s blog.

Disclaimer: Information is not guaranteed to be comprehensive or accurate. Consult a healthcare law attorney for guidance.

Model 3

You would think billing for other people’s patients could be done in your therapy business. But that’s not the case – unless the individual is your patient. And would another therapist want to refer their patients to you – a competitor? Of course, there are several people seeking compression that aren’t wanting treatment. They just need someone who can bill insurance. But does billing for a supply item constitute someone becoming a patient?  Besides that, the 42 CFR has special considerations for therapists billing for compression for their own patients that doesn’t apply to therapists billing for individuals who are not their patients. (See April’s blog update.) A seemingly easy solution is to have a second business.

If you have a second business for DME, why not simplify things? Keep your therapy services in the therapy business & the DME in a DME business. You could have both businesses in the same location & save on costs (like rent). Additional benefits could include having a different taxonomy code (for potential better reimbursement rates), less confusion among insurance payors, & legal protection from financial losses.  You could refer your therapy patients to the DME business. Right? Wrong. (Why not? Well, government complicates things.)

Medicare Supplier Standards2

Anyone who plans to bill federal healthcare programs for DME must be mindful of the 42 CFR Supplier Standards. One of those standards states a supplier is prohibited from sharing a practice location with another Medicare provider or supplier. But there are a few exceptions. Two of these include:

  • a therapist (i.e. provider) who is billing DME for their own patients only
  • a DME supplier can be co-located with & owned by a Medicare provider (e.g. therapist), but the businesses must operate separately (separate phone lines, separate computers, separate staff, etc.). You must also meet the definition of a Medicare provider.7,8

It would seem you actually could separate the therapy business & refer your patients to your DME company. But that’s not the case. (Did I mention government complicates things?)

The Anti-Kickback Statute

The Anti-Kickback Statute is one of the fraud & abuse laws mentioned last month. It was an amendment added to the Social Security Act & first passed by Congress in 1972 as an effort to prevent fraud & abuse of federal healthcare programs (i.e. Medicare & Medicaid).6 It can be found in Title 42 of the U.S. code which covers public health & welfare. (These laws are broken down into titles, chapters, subchapters, parts & sections.)3,4 Specifically, Section 1320a-7b talks about the Anti-Kickback Statute. This amendment prevents giving or receiving anything of value (e.g. money, free rent or other perks) for generating healthcare business paid for by federal programs.

In other words, if you had two businesses that billed Medicare or Medicaid, & you wanted to refer patients from one to the other, you can’t. (Unless, of course, you don’t mind jail time & hefty monetary penalties. Most therapists try to avoid these.) There are a few “safe harbor” exclusions that will allow such business transactions.5 But all elements of a safe harbor must be met. (And these have pros & cons.)

Two notes: First, this only applies to providers/suppliers billing federal healthcare programs (clarification is needed as to whether the non-direct plans like the exchange programs provided by commercial plans are included in this). Second, you can still have a therapy business providing therapy services & DME to your own patients. You can also have a separate DME business for other people’s patients in addition. But these must operate entirely separately & cannot refer business between them if you bill federal healthcare programs unless you fall within one of the safe harbor exclusions. You would also be wise to consider other mitigating factors to prevent implication of Anti-Kickback Statute violation.

There’s one more question that comes to mind regarding billing. What if a Medicare patient wants to pay cash for an item? We’ll look at that next month.

References
1 https://oig.hhs.gov/compliance/physician-education/fraud-abuse-laws/
2 (supplier standards) https://www.ecfr.gov/current/title-42/chapter-IV/subchapter-B/part-424/subpart-D/section-424.57
3 https://www.govinfo.gov/app/details/USCODE-2010-title42/USCODE-2010-title42-chap7-subchapXI-partA-sec1320a-7b
4 https://uscode.house.gov/
5 (safe harbors) https://www.ecfr.gov/current/title-42/chapter-V/subchapter-B/part-1001/subpart-C/section-1001.952
6 https://www.whistleblowerllc.com/anti-kickback-statute/#:~:text=Congress%20first%20enacted%20the%20AKS,physicians%20corrupt%20medical%20decision%2Dmaking.
7 (clinic definition) https://www.govinfo.gov/content/pkg/USCODE-2011-title42/html/USCODE-2011-title42-chap7-subchapXVIII-partE-sec1395x.htm, https://www.cms.gov/Regulations-and-Guidance/Guidance/Transmittals/downloads/R5BP.pdf & https://www.ssa.gov/OP_Home/ssact/title18/1861.htm
8 (OTPP definition) https://www.cms.gov/Regulations-and-Guidance/Guidance/Transmittals/downloads/R5BP.pdf

Attribution
Photo by Olia Danilevich Pexels

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Compression Garments & Insurance (part 5/5)

Because of the Lymphedema Treatment Act, Medicare will now cover lymphedema compression, supplies & aids with the appropriate diagnosis code & medical necessity. What items are covered & how do you get them?

Diagnosis Codes

A diagnosis code must be written on a physician order. Appropriate diagnosis codes1 to qualify for the new lymphedema benefit category are

  • I89.0 Lymphedema, not elsewhere classified
  • I97.2 Post-mastectomy lymphedema
  • I97.89 Other postprocedural complications & disorders of the circulatory system, not elsewhere classified
  • Q82.0 Hereditary lymphedema

Medical Necessity

A patient must have a medical necessity for the ordered item(s). Medical necessity is proven by physician order & supportive documentation. A physician order can be signed by a “treating practitioner,” meaning, a medical doctor, doctor of osteopathy, podiatrist, physician’s assistant (PA), nurse practitioner (NP), or clinical nurse specialist (CNS).2,3 The following must be on the “standard written order.”2

  • The name of the treating practitioner, their NPI (national provider identifier), their signature & the date
    • stamps can’t be used; signatures & dates can be electronic or handwritten1,4
  • The beneficiary’s name (the patient’s name) & Medicare number
  • Description of the item(s) (such as the HCPCS code1)
    • options or features constituting an upgrade above the basic item must be listed separately on the order (such as upgrading from an off-the-shelf hose to a custom hose or adding a lining, zipper or pocket to a custom garment, etc.)
    • supplies must be listed separately on the order (such as a donning frame, donning gloves, etc.)
  • The quantity to be dispensed.

Supportive documentation (if requested) would include medical or therapy notes. (Note: Some DME requires a face-to-face encounter with the treating practitioner within 6 months of an order.5 Lymphedema items are not currently on that list.)

Compression Supplies Covered

Phase 1 of lymphedema treatment (the reduction or decongestion phase) requires decongestion supplies. This typically includes a cotton liner, a padding layer & several short-stretch bandages. At times, a Velcro reduction garment or wound kit might be used instead.

For coverage, supportive documentation must include justification for the quantity & frequency of these items. In my experience, two sets of supplies are needed (one to use & one to wash). Each set can be laundered & reused each session. (Avoid bleach, fabric softener, Woolite, dryer use or placing items in the sun as these things can damage the elastic fibers.)

When it comes to billing, a supplier will need to line-item each compression bandaging supply, accessory, wrap or garment that doesn’t have a unique HCPCS code with one of the following best-matched HCPCS codes:

  • A6549 – Gradient compression garment, not otherwise specified
  • A6584 – Gradient compression wrap with adjustable straps, not otherwise specified
  • A6593 – Accessory for gradient compression garment or wrap with adjustable straps, not otherwise specified
  • A6609 – Gradient compression bandaging supply, not otherwise specified.

The supplier will also need to add:1

  • a description of the item (including the inch, foot or yard for supplies)
  • manufacturer name
  • product name & number
  • supplier price list
  • HCPCS of a related item.

Billing modifiers are needed as well (right, left, replacement – if an item is lost, stolen or damaged, etc.).

All therapists & patients should be good stewards & conservative in their utilization of this benefit. Abuse & waste will cause problems down the road (be it increased government debt, higher taxes or another outcome).

Compression Garments Covered

Phase 2 of lymphedema treatment is the maintenance phase. This is when compression garments are needed to maintain the volume loss attained in Phase 1. Medicare covers these garments which may include:

  • off-the-shelf or custom (for all body parts) (typically flat-knit, circular-knit or Velcro)
  • day &/or night garments (typically Velcro or foam garments).

Medicare allows for:

  • (3) daytime garments every 6 months
  • (2) nighttime garments every 24 months

    (Note: There are two situations in which additional compression may be covered. The first is if an item is lost, stolen or damaged. The second is if there is a change in the patient’s status or condition. Either situation will require a new order & the replacement clock will start over.1)

Garment Aids Covered

Many patients are not aware there are several donning & doffing aids available to help get compression on or to remove it. There are donning frames, slippery material, gloves & other tools your therapist may know about. Justification for the quantity of supplies & the frequency of dispensing must be supported by documentation.

YouTube
Check out the Lymphedema Savvy YouTube channel for an upcoming treatment vlog. Information about the Lymphedema Treatment Act & billing will be included in a future video.

*****UPDATE 07/22/24*****

The following educational handouts were provided by the Lymphedema Treatment Act:

Patients
Providers
Suppliers

*****UPDATE 02/19/25*****

The current list of HCPCS lymphedema compression billing codes can be found here. The US Medical Compression Alliance has noted Medicare approval of additional codes here (effective April 1, 2025). They are specifically listed in Medicare’s Final Rule here. Medicare Learning Network (MLN Matters publication) provides billing tips here.

References
1 (coverage) https://www.cgsmedicare.com/jc/pubs/news/2023/12/cope147943.html
2 (orders) https://www.cms.gov/medicare-coverage-database/view/article.aspx?articleid=55426
3 (physician) https://www.ssa.gov/OP_Home/ssact/title18/1861.htm
4 (signatures) https://www.cms.gov/Regulations-and-Guidance/Guidance/Manuals/downloads/pim83c03.pdf
5 (face to face) https://www.cms.gov/data-research/monitoring-programs/medicare-fee-service-compliance-programs/medical-review-and-education/dmepos-order-requirements or https://www.federalregister.gov/documents/2023/01/17/2023-00718/medicare-program-updates-to-face-to-face-encounter-and-written-order-prior-to-delivery-list#:~:text=For%20items%20on%20the%20F2F,of%20the%20written%20order%2Fprescription.

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Compression Garments & Insurance (part 4)

Requirements for Medicare Coverage of Lymphedema Compression, Supplies & Accessories

The last post on the Lymphedema Treatment Act (LTA) passage was in December. (The LTA passed December, 2022, & became effective Jan 1, 2024, providing coverage to Medicare beneficiaries for lymphedema compression garments, supplies & accessories.) Since my last post on the topic, I’ve had questions about what’s needed for Medicare coverage. The following are required:

  • DMEPOS Enrolled Supplier – a supplier can be a DME supplier or a medical professional providing items to their own patients after enrolling with Medicare to do so. (To learn about becoming a supplier or how a medical professional can become a supplier for their own patients, click here.)

    Note: A therapist cannot be a provider & a DME supplier in the same space unless solely providing these items to their own patients. They must still become an enrolled supplier & meet certain requirements to bill for items provided to their own patients. (Such therapists cannot bill items for people who are not their own patients. They can fit patients, however. See below.) (CFR, Title 42)

    Note: A trained, experienced fitter is recommended to measure lymphedema compression (particularly custom) & to recommend appropriate accessories. If measurements have been obtained from a therapist who is not enrolled as a DMEPOS supplier, a 3rd party supplier can be used for ordering & billing Medicare. However, payment for the fitting itself is included in the garment payment amount. So, therapists fitting patients & submitting an order to a 3rd party must get payment for their service from that supplier (if payment is desired). Fitting Medicare patients is not a separate, billable service under this law.
  • Script – there are specific items that must be on the physician’s order (i.e. script).2

    Note: A physician, nurse practitioner, or clinical nurse specialist is considered a “treating practitioner.”

    Note: A supplier must have additional information such as supportive documentation. They will likely ask for medical records (such as progress notes, therapist notes, etc.) verifying medical necessity.

    Items Needed on Order:
    – Beneficiary’s name or Medicare beneficiary identifier (i.e. Medicare number)
    – Order date
    – A lymphedema diagnosis (acceptable ICD-10 diagnosis codes include: I89.0, Q82.0, I97.2, I97.89)
    – Item description (the HCPCS billing code). For a list of lymphedema compression HCPCS codes, click here.
    – Quantity of item to be dispensed (i.e. how many are being ordered)
    – Treating practitioner’s name or NPI
    – Treating practitioner’s signature (no signature stamp is allowed)

Next month, we’ll review what Medicare covers, the frequency & allowable amounts.

************UPDATE 02/19/24**********

The Lymphedema Treatment Act recently published an article summarizing the above. Here’s that pdf.

Coverage-for-Lymphedema-Compression-Supplies-copyDownload

References
1 https://med.noridianmedicare.com/web/jddme/dmepos/lymphedema-compression-treatment
2 https://www.cms.gov/medicare-coverage-database/view/article.aspx?articleid=55426
3 https://www.cgsmedicare.com/jc/pubs/news/2023/12/cope147943.html
4 https://lymphedematreatmentact.org/final-coverage-rules/

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Compression Garments & Insurance (part 2)

As you know from last month’s blog, the Lymphedema Treatment Act (LTA) was passed in December of 2022. Most of 2023 has been spent with Heather Ferguson & others communicating with legislators & Medicare on what should be included in the bill coverage.

Flat-knit hose & a toe cap

Bill Coverage

On page 45 of the “Medicare and You 2024” handbook,1 it states if you have a diagnosis of lymphedema, Medicare will cover your medically gradient compression garments (with a physician’s prescription) at 80%. Coverage is for standard, off-the-shelf garments or custom-fitted garments. You’ll pay your 20% (unless you have a supplemental plan). Your part B deductible applies.

The proposed final rule is a more specific.2 It states medically gradient compression garments (readymade or custom, Velcro or other) will be covered as well as bandaging supplies. Anyone providing these items must be enrolled with Medicare as a DME supplier & meet supplier standard requirements.

Where You Can Find a Supplier Who Can Bill For Compression Garments

You can use Medicare’s online search tool3 to search for a supplier capable of billing for the items. One concern I have is whether these will be competent fitters (vs standard DME suppliers whose knowledge is typically limited to basic sleeves & hose). Lymphedema Therapy Source plans to use a second business to bill for lymphedema supplies & compression (including pneumatic compression pumps). This will include a lengthy process of becoming an enrolled DMEPOS supplier, becoming accredited, meeting all DME supplier and quality standards, obtaining a surety bond & submitting claims to the appropriate Medicare contractor for DME. (No small task!)

circular-knit hose

Billing Codes4 (see updates at the end of page)

While therapy services are billed using CPT codes, products (or DME supplies) are billed with HCPCS Level II codes. Below is a list of expected codes & descriptions for lymphedema compression items covered by Medicare as a result of the Lymphedema Treatment Act.

HCPCS Codes for Compression Treatment Items:
Compression Hose
A6530 Gradient compression stocking, below knee, 18-30 mmHg each
A6531 Gradient compression stocking, below knee, 30-40 mmHg, each*
A6532 Gradient compression stocking, below knee, 40-50 mmHg, each*
A6533 Gradient compression stocking, thigh length, 18-30 mmHg, each
A6534 Gradient compression stocking, thigh length, 30-40 mmHg, each
A6535 Gradient compression stocking, thigh length, 40-50 mmHg, each
A6536 Gradient compression stocking, full length/chap style, 18-30 mmHg, each
A6537 Gradient compression stocking, full length/chap style, 30-40 mmHg, each
A6538 Gradient compression stocking, full length/chap style, 40-50 mmHg, each
A6539 Gradient compression stocking, waist length, 18-30 mmHg, each
A6540 Gradient compression stocking, waist length, 30-40 mmHg, each
A6541 Gradient compression stocking, waist length, 40-50 mmHg, each

Velcro (or other)
A6545 Gradient compression wrap, non-elastic, below knee, 30-50 mmHg, each*
A6549 Gradient compression stocking/sleeve, not otherwise specified

Compression Sleeves & Gloves
S8420 Gradient pressure aid (sleeve and glove combination), custom made
S8421 Gradient pressure aid (sleeve and glove combination), readymade
S8422 Gradient pressure aid (sleeve), custom made, medium -weight
S8423 Gradient pressure aid (sleeve), custom made, heavy -weight
S8424 Gradient pressure aid (sleeve), readymade
S8425 Gradient pressure aid (glove), custom made, medium -weight
S8426 Gradient pressure aid (glove), custom made, heavy -weight
S8427 Gradient pressure aid (glove), readymade
S8428 Gradient pressure aid (gauntlet), readymade

Other (including treatment supplies)
S8429 Gradient pressure exterior wrap
S8430 Padding for compression bandage, roll
S8431 Compression bandage, roll

There may be changes to some of these codes. For those with an asterisks (*), new HCPCS codes may be assigned when these items are used as surgical dressings (such as in the case of an open venous stasis ulcer).

Velcro leg & foot compression

***UPDATE 11/30/23***

Beginning in 2024, there will be 81 HCPSC codes specifically for lymphedema compression supplies (most will be new).

Where You Can Find More Information

Visit the Lymphedema Treatment Act for more information & an up-to-date status on the bill & its coverage: https://lymphedematreatmentact.org/faqs/.

A special thank-you to Heather Ferguson & her team for their ongoing fight to get the LTA passed.

***UPDATE 01/05/24***

Lymphedema HCPCS billing codes have been published & are listed here. A person must have one of the following diagnosis codes:

  • I89.0 (lymphedema, not elsehwere classified)
  • I97.2 (postmastectomy lymphedema)
  • I97.89 (Other postprocedural complications and disorders of the circulatory system, not elsewhere classified)
  • Q82.0 (hereditary/primary lymphedema)

References
1 https://www.medicare.gov/publications/10050-Medicare-and-You.pdf
2 https://lymphedematreatmentact.org/wp-content/uploads/2023/07/LTA-Section-Home-Health-Rule.pdf
3 https://www.medicare.gov/medical-equipment-suppliers/
4 LTA Home Health Rule, p. 13

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Compression Garments & Insurance Coverage

Even though the legislation was submitted over 10 years ago to government delegates, the Lymphedema Treatment Act is still not widely recognized by most people who have lymphedema. Yet passage of the bill (which was accomplished Dec. 23, 2022) is so important to lymphedema care. It will become effective Jan. 1, 2024. Why is it important to lymphedema?

Lymphedema Care

Lymphedema treatment has two phases. Phase I is decongestion. This is the therapy phase when CDT is administered. (CDT is complete decongestive therapy & involves manual lymph drainage, bandaging, skin care & exercise.) Once maximum reduction is attained in therapy, the next step is fitting with a compression garment (usually for day & night). This is a part of Phase II (the maintenance phase).

Maintenance Phase

Compression garments are mandatory for lymphedema maintenance. Without them, swelling will promptly recur, & the reduction obtained during therapy will be lost. There are a few different types of compression.

  • Flat-knit (usually custom-made, but readymade is available) – daytime garment
  • Circular-knit (usually readymade, but custom is available) – daytime
  • Velcro (commonly used in wound care or as a night option) – day or night
  • Foam sleeves (nighttime use) – night
    (Note: Self-bandaging at night is the textbook recommendation for lymphedema maintenance.)

Recommended Compression

While circular-knit & Velcro can be used in some edema-related cases (such as venous edema) or combination edema-lymphedema cases (such as phlebolymphedema), the recommended compression for lymphedema is custom, flat-knit. One reason is the fact the many lymphedematous extremities don’t fit into the readymade dimensions. Another reason is the way flat-knit garments are made. While other garments provide compression, flat-knit provides the best containment. Flat-knit also aids in softening hardened, fibrotic tissue caused by lympedema. Finally, flat-knit is a thicker fabric less prone to bunching & causing pain in joints (such as ankles & behind knees).

Cost & Insurance

The downside to compression is cost. Compression should be replaced every 6 months (to a year) because it loses its effectiveness as fibers wear out.1 Many insurance carriers follow Medicare’s guidelines, & until 2024, Medicare won’t cover the cost of lymphedema compression. Here’s where you come in! (For more on cost, see the below video clip.)

Lymphedema Treatment Act (LTA)

The Lymphedema Treatment Act was passed in December of 2022. But the legislation details are still being worked out. Heather Ferguson is the founder of this legislation. She sends out a newsletter with updates. And she needs your help. Please read the below letter, & contact your insurance company. Heather makes it easy for you by providing templates & links.

LETTER: https://ltstherapy.com/wp-content/uploads/2023/09/LTA-1.pdf
Action Item #1: click here
Action Item #2: click here

References
1 Foldi, M, Foldi, E. (2006). Foldi’s Textbook of Lymphology (2nd ed.), p. 595. Germany: Urban and Fisher. Foldi, M., & Foldi, E. (2012). Foldi’s Textbook of Lymphology (3rd ed.). Urban and Fisher.

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Contraindications to MLD

One of the more popular posts I’ve written is about contraindications to treatment (time when treatment should not be done). Lymphedema treatment includes manual lymph drainage (MLD), multi-layer short-stretch bandaging, skin care and exercise. Both MLD & bandaging have specific precautions.1

General Precautions

The general precautions for MLD include:
– Active infection (caused by pathogens)
– Untreated cardiac failure
– Renal failure

There’s a relative contraindication for MLD:
– Malignant lymphedema (active cancer is causing the swelling)

Specific Precautions

But there are also specific precautions for MLD depending on where it is performed on the body. A sequence for MLD typically starts at the neck where the fluid drains. It doesn’t matter if swelling is in the legs, arms, head or elsewhere. But not all people will be appropriate for a neck sequence due to specific contraindications. For example, if someone has a cardiac arrhythmia related to an atrioventricular block or “AV-block” (referring to a block of the AV node in the heart’s electrical system). Doing a neck sequence could potentially stimulate the vagus nerve and cause cardiac arrest.

AV node

Understanding General Precautions (Active Infection)

So why are the general precautions a concern? In the case of an active infection caused by a pathogen (like bacteria in a cellulitis infection), performing MLD may cause the infection to spread. Fascinatingly, even though arterial & lymphatic flow increases during inflammation, in local inflammation, lymph vessels near the site of infection constrict. Thisprevents bacteria from escaping and entering the rest of the circulation.  In performing MLD, this spasm could be relaxed, allowing normal flow to resume. The bacteria might then be allowed to move into the rest of the body & the infection could become systemic (i.e. sepsis).

(Untreated Heart Failure)

In the case of untreated heart failure, the concern is increasing pressure. The pressure in the veins returning blood to the heart near each collar bone (clavicle) is usually low. This is where lymphatic fluid returns to the body’s blood circulation. In untreated heart failure, the pressure is increased in these veins. Stimulating lymph flow with MLD would only add more fluid to a congested area and further increase the pressure. This can contribute to heart damage.

venous angle (top right illustration)

(Kidney Failure)

In the case of kidney failure, there is swelling in the body (often the lower part of the body). MLD would increase the amount of fluid returning to the heart and subsequently to the kidneys, increasing the fluid they must filter. This could overtax them. But the main reason MLD is not performed is because it would be of no use (if swelling being treated is due to kidney failure). That’s because kidney-caused swelling is edema, not lymphedema. The lymph vessels are already working as hard as they can to help get rid of the excess fluid. MLD speeds up lymphatic flow but beyond its normal high-working speed.

(Active Cancer)

In the case of cancer, MLD is a relative precaution. Meaning, there’s some room for discernment. The primary reason for avoiding MLD in the case of cancer is the potential to spread the cancer cells. (Cancer spreads through one of two ways: blood or lymph flow.) However, according to Foldi, molecular biology showed metastasis formation is an active process controlled by the cancer cells themselves. For example, cancer cells secrete a protein called vascular endothelial growth factor C (VEGF-C). 2 This is responsible for creating new lymphatic vessels within and around a tumor from existing ones (lymphangiogenesis). Nonetheless, many therapists prefer to avoid the area of the tumor to avoid any potential accusation of / or potential of hastening cancer cell transportation.

It’s also important to know if a patient is receiving adequate cancer treatment and that the cancer is responding. One note: Some suggest avoiding MLD for 2-3 days after chemo to allow the drug(s) to remain in the body and do their job. Others suggest proceeding with MLD to help distribute the chemo throughout the body and to use gloves to prevent transmission of chemo through the skin to the therapist. I would tend to side with the former group (avoid MLD – at least in the area of the body directly affected by the tumor1). But it’s important to check with the oncologist before providing any treatment.

References
1 Foldi, M, Foldi, E. (2006). Foldi’s Textbook of Lymphology (2nd ed.), p. 275-276. Germany: Urban and Fisher. Foldi, M., & Foldi, E. (2012). Foldi’s Textbook of Lymphology (3rd ed.). Urban and Fisher.
2 Yan, H., Zhang, C., Wang, Z. et al. CD146 is required for VEGF-C-induced lymphatic sprouting during lymphangiogenesis. Sci Rep 7, 7442 (2017). https://doi.org/10.1038/s41598-017-06637-7

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Why People with Lymphedema are Prone to Infection

Infection prevention is an important part of lymphedema maintenance. Taking good care of your skin is a primary way to prevent infection.  Lymphedematous tissue is prone to infection for a few reasons. Keep reading to find out why!

Congestion

First, a limb with lymphedema is congested as a result of poor drainage (the lymphatic system in the affected limb is mechanically or structurally damaged and cannot handle the amount of lymph fluid it needs to, so fluid backs up). When lymph fluid stagnates, it causes immune deficiency.  For example, transportation of immune cells (like lymphocytes and macrophages) to the lymphedematous limb slows down. Removal of bacteria and waste from the tissue slows down.

Think about a room in your house – let’s say your bathroom. What would happen if the sewer lines that drained your sink, shower or toilet water stopped working?  Then imagine the cleaning crew and plumber were stuck in traffic, too.  Do you have that picture in your mind?  Now you have an idea of what happens when your lymphatic system isn’t working. The scene isn’t too pretty (or healthy).

Keep in mind, lymph nodes that drain fluid from the impacted limb become diseased. Removal of antigens (foreign substances like bacteria) is impaired. So, the skin of the lymphedematous limb becomes diseased itself (causing common presentational symptoms of lymphedema).1 One scratch, puncture or sunburn could be an entry point for bacteria.

Protein-rich fluid is food for the bad guys

Second, people with lymphedema are prone to infection because the involved limb contains protein-rich fluid. This fluid is a great place for bacteria to multiply. They have the food they need (feeding off the nutrients found in lymph fluid), and the immune cells that would stop them are delayed in getting to the scene because of the swelling. In math terms:  Healthy bacterial growth + nothing to stop them = infection.

Skin disease

Third, as noted earlier, skin becomes diseased in lymphedema. One resulting symptom can be itching (pruritus). Minor trauma caused by itching can compromise skin integrity and be an entry point for bacteria. Another can be hyperkeratosis, one of the skin presentations that may occur as lymphedema progresses. Hyperkeratosis is a thickening of the skin skin due to overgrowth of keratin cells which causes elevations where bacteria can grow.

For tips on preventing infection and managing lymphedema, see December’s blog.2  Also visit the National Lymphedema Network’s Position Paper on Healthy Habits and Lymphedema as well as Risk Reduction.3 To receive tips about swelling and news about upcoming video posts, ebook updates, classes and group interactions with others, click here.

1 Foldi, M, Foldi, E. (2006). Foldi’s Textbook of Lymphology (2nd ed.), p. 224. Germany: Urban and Fisher.
2 https://ltstherapy.com/blog/category/lymphedema-maintenance/
3 https://lymphnet.org/position-papers

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Infection Prevention

Common infections in lymphedema are cellulitis and erysipelas.  As with most infections, they present with redness, swelling and warmth. Pain and/or blisters may or may not be associated.

  • Cellulitis is an infection of the deep subcutaneous tissue due to the streptococci bacterium (or other bacterium such as staphylococcus aureus). Cellulitis has a slower onset and the redness has an undefined, vague border. This infection is more often found in the legs.
  • Erysipelas (also called St. Anthony’s fire) is an infection of the upper layers of skin that tends to recur. It is caused by the streptococcal bacterium and has a faster onset than cellulitis. The associated redness has a defined or sharp edge (like a burn) and is slightly raised. It usually begins with chills followed by a high fever and may include severe malaise (pain), nausea and headache.1,3, 5

These two infections can co-exist as they involve different layers of the skin.  But whether there are two infections or one, in the U.S. they are commonly lumped under one umbrella and called “cellulitis.”  For our purposes, cellulitis is simply a skin infection causing redness, swelling and warmth. If you have lymphedema and you have symptoms of infection, you need to get to the doctor promptly. Each infection further damages your already impaired lymphatic system — and if left untreated, can be fatal.

How do you get cellulitis? We all have bacteria that normally live on our skin. When something causes a break in your skin (an insect bite, an animal bite, a sunburn, a scratch, a thorn, etc.), bacteria have a way inside your body. Most of the time, your immune system fights them off. But even the healthiest among us can be susceptible. In lymphedema, immunity is reduced in the involved extremity. As a result, a person with lymphedema is predisposed to getting cellulitis (recurrent infections are common in stage III lymphedema).  It’s also possible to get cellulitis and have no apparent external trauma to your skin. This may be due to skin being more permeable (such as in a distended, swollen limb). Other risk factors include being older, having a serious illness or an immunocompromised state, liver or kidney disease, venous insufficiency, 2 or any condition that may impact sensation (such as neuropathy or paralysis).

How can you prevent cellulitis?  If you have lymphedema, wear your compression to control swelling. Additionally: 3, 4

  • Avoid skin punctures (wear gloves during gardening, don’t roughhouse with pets, use bug spray)
  • Avoid scratching (try gently rubbing an itch)
  • Wear gloves when working with chemicals or hot dishwater
  • Wear protective mitts when working near a hot stove
  • Wear a thimble if sewing
  • Don’t cut cuticles and avoid nail salons
  • Use sunscreen
  • Treat any skin condition that may compromise your skin (such as athlete’s foot, eczema or psoriasis)
  • Use more acidic soaps and lotions

In January’s blog, we’ll talk about the best soaps and lotions for lymphedema.

References
1 British Association of Dermatologists. Cellulitis and Erysipelas. British Association of Dermatologists; 2012 (reviewed 2021); 1-5. Available at: https://www.bad.org.uk/shared/get-file.ashx?id=156&itemtype=document.
2 Ki, V. Bacterial Skin and Soft Tissue Infections in Adults. Can J Infect Dis Med Microbiol. 2008 March; 19(2) 173-184. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2605859/
3 Foldi, M, Foldi, E. (2006). Foldi’s Textbook of Lymphology (2nd ed.), p. 262-271. Germany: Urban and Fisher.
4 NLN Medical Advisory Committee. Summary of Risk Reduction Practices. NLN; 2012; 1. Available at: https://lymphnet.org/position-papers
5 https://www.merckmanuals.com/professional/dermatologic-disorders/bacterial-skin-infections/erysipelas

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